Lived Experience Network

Structured lived experience involvement for health and social care

LENs helps organisations bring the knowledge of patients, people who access services and carers into the work that affects them.

We provide the structure, people and practical support needed to involve Experts by Experience in service review, research, co-production, training, advisory work, testing and events.

Reach and experience

A national network with practical experience

50+

Experts by Experience

70+

Services visited

5+ years

Of lived experience impact

LENs works nationally, with activity delivered in person, online or in a hybrid format depending on the purpose and setting.

Experience across the sector

Organisations LENs has worked with

LENs has worked with organisations across health, social care, policy, training and service improvement.

NAPICU
Cygnet
NHS
Crisis Prevention Institute
Department of Health and Social Care
Psychiatry UK
National Institute for Health and Care Excellence
Andy Johnston Associates
Waterlily Care

A clearer starting point

Lived experience can inform more than one conversation

Health and social care organisations have involved people with lived experience for many years. Too often, though, their role has been loosely defined or limited to sharing a personal story at one point in a much larger piece of work.

LENs was created to help organisations take a more structured approach. We work with you to clarify the question, choose the right form of involvement and create a role in which lived experience can inform the work properly.

You do not need to arrive with a finished brief. Tell us what your organisation is trying to understand, improve or develop. We will help scope the work and can combine services when one approach is not enough.

Our services

How LENs can support your organisation

01

Expert by Experience Programme

Build patient and/or carer insight into regular service review and improvement activity, including service visits, feedback capture and monthly insight reports.

Explore Expert by Experience Programme
02

Engagement & Events

Involve Experts by Experience in keynotes, panels, chaired discussions, workshops, films and other public or internal activity, with support before and after the event.

Explore Engagement & Events
03

Lived Experience Advisory Boards

Create a regular forum where Experts by Experience can review plans, test ideas, raise themes and return to earlier advice with senior teams.

Explore Lived Experience Advisory Boards
04

Product & Service Testing

Bring lived experience into the testing of products, services and resources, including their usability, accessibility, dignity, safety and fit with real settings.

Explore Product & Service Testing
05

Recruitment, Workforce & Supervision

LENs recruits and employs Experts by Experience, then places them in agreed roles within an organisation. We can also provide role scoping, onboarding, supervision, wellbeing support and administration.

Explore Recruitment, Workforce & Supervision
06

Research, Evaluation & Insight

Include lived experience in research design, interviews, focus groups, analysis, reporting and the presentation of findings.

Explore Research, Evaluation & Insight
08

Training and Accreditation Support

Involve lived experience in training-needs discussions, content review, development and co-delivery, including work connected with preparation for relevant standards.

Explore Training and Accreditation Support

Why LENs

A clearer role for lived experience

01

Structure around the contribution

We help define why lived experience is being involved, what the role covers, how the work will be carried out and what the organisation will receive. This gives contributors and organisations a shared understanding from the start.

02

Practical work carried by LENs

Our role can include scoping, recruiting and employing Experts by Experience, coordination, preparation, support, facilitation, analysis and reporting. The exact arrangement depends on the service, but the organisation does not have to build every part of the process itself.

03

The right approach for the question

An advisory board, a service visit and a research interview do different jobs. LENs helps organisations choose the form of involvement that fits the question and combine services where the work needs more than one route.

Who we work with

For organisations working in and around health and social care

LENs can work with:

  • NHS organisations and ambulance services
  • Independent health and social care providers
  • Local authorities and public bodies
  • Charities and community organisations
  • Universities and research teams
  • Training organisations
  • Healthcare suppliers, product vendors and innovators
  • Other organisations whose work affects patients, people accessing services or carers

Start a conversation

What would you like to do?

LENs works nationally, with activity delivered in person, online or in a hybrid format depending on the purpose and setting.